Hope and Healing for Sickle Cell Warriors
Dedicated to providing support, resources, and hope to individuals and families battling Sickle Cell Disease.
Join us in empowering the Sickle Cell community
Championing the Fight Against Sickle Cell Disease
Your support helps us drive innovative research, raise awareness, and provide critical care to those in need.
Join us in empowering the Sickle Cell community
Meet Our Foundation
Empowering Lives, One Step at a Time.
Introduction to the Foundation
Brief Overview:
At the Eben Family Sickle Cell Foundation, our mission is to provide comprehensive support, education, and resources to individuals and families affected by sickle cell disease. We strive to improve quality of life through advocacy, awareness, and compassionate care.
Our Programs and Impact
Programs Overview:
Support Services: Providing patients and families with essential resources, emotional support, and access to necessary treatments, including the medication hydroxyurea for managing sickle cell disease.
Educational Workshops: Offering workshops to educate the community and healthcare providers about sickle cell disease, including the importance of genotype testing for early detection and management.
Advocacy: Advocating for better healthcare policies, increased funding for sickle cell research, and promoting the availability of essential medications like hydroxyurea.
How You Can Help
Ways to Give:
Your generous donations help us provide critical support and resources to the sickle cell community. Every contribution makes a significant impact.
Join our team of volunteers and help make a difference for those affected by sickle cell disease. Whether you’re organizing events, providing support, or assisting patients, your help matters.
A Dialogue on Sickle Cell
Past Event: September 28, 2024
1 of 13
News, Events and Resources
Stay informed with the latest updates and stories from the Eben Family Sickle Cell Foundation.
Events
Genotype Drive
Know Your Type: Live Right
Date: October 22 - 23, 2024
Reservation: Click below to view info
Join us for the Optimum Health Global (OPHEG) Genotype Drive, health education of genotype and testing 30 randomly selected persons for free testing 100+ persons randomly selected for discounts
Icône Brunch
Stay tuned and sign up to get latest information about next icôneBrunch.
Date: Fall 2025
Reservation: RSVP
Join us for the Icône Brunch 2025, a signature event that brings together community leaders, advocates, and supporters to celebrate and advance the mission of the Eben Family Sickle Cell Foundation.
Brochures And Guides
Understanding Sickle Cell Disease
Dowloadable PDF explaining the basics of sickle cell disease, its symptoms and treatment options.
Sickle Cell Disease Prevention and Treatment
Practical tips and strategies for patients and families to manage the condition effectively at home.
Nutrition and Sickle Cell:
Information on dietary choices that can help manage sickle cell symptoms.
News
2024 First Quater Event
UPCOMING NEWS
Sickle Cell Month Nationwide Information
UPCOMING NEWS
Videos and Webinars
A Dialogue On Sickle Cell
In this open conversation with friends, Emmanuel dives into the topic of Sickle Cell Disease from a personal and relatable perspective.
Patient Support
Texas Health and Human Services
Information on local and online support groups for patients and families.
GET IN TOUCH
Let us know how we can help
